Life with Neurofibromatosis and Chronic Migraines | Health Update

A video on my life with Neurofibromatosis type 1 (nf1) and chronic migraines, trying botox treatment, as well as an update about my diagnosis of pseudotumor cerebri. - ↓ open for more! ↓ -

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I know I might have scared you a bit with my Pseudotumor Cerebri video. Out of context, it seems like a very scary thing. It is, but I'm not really a stranger to seriously intense migraines and chronic pain. Neurofibromatosis is a genetic condition I've had since birth, so I have a lot of experience with it.

My videos on this channel are still mainly books, writing, and general fun stuff. I wanted to make this video for anyone out there who is scared about their own diagnosis or for anyone who wants to learn more.

I also believe that disability should not be so stigmatized, so it is important to show that my health may limit me somewhat, but I am still able to live an awesome life. Chronic pain or disabilities of any sort are just a limitation, they don't define a person.

Anyway, I hope you enjoyed or learned something from this video and I hope you stick around for more videos! Thanks for watching!

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My name is Lily Meade. I love books! I like to live a life inspired by fiction. I truly believe that anyone can find their own happy ending, whether in a book or in real life. I am an aspiring young adult author. I absolutely love to read (especially YA fiction, but I read adult and nonfiction, too!) and write (novels mostly). I really love storytelling in any form.

On my channel you will find a variety of videos about my life, writing (including writing updates as well as tips and tricks), novel research, book recommendations, and more! I’m passionate about a lot of things and I like making friends. Thank you for watching my videos! Please say hello!

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Send me a letter and I'll send you one back!

Lily Meade
P.O. BOX #98104
Lakewood, WA 98496

• Category

  Neurofibromatosis Type 1