- Diet
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- Lymphoma - Non-Hodgkin
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- MUTYH (or MYH)-Associated Polyposis
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- Nasal Cavity and Paranasal Sinus Cancer
- Nasopharyngeal Cancer
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- Music
i'm talking to you - ep. #1- My Story as The Perfect Storm: My Endometriosis and HLRCC Journey
Hi, I'm Sandra. I have Endometriosis and HLRCC, a super rare genetic condition. I'm undergoing a hysterectomy at 26 for the treatment uterine fibroids due to my HLRCC. I want to chronicle my journey thus far and going forward on what it's like dealing with two chronic invisible illnesses. And I want you to join. I want to make this a collaborative, conversational diary.
Leave me comments, send me an email, share your battle and your story, whether it's Endo or any other chronic illness. I want people to know they're not alone.
Chapters:
00:00 Intro
05:28 Symptoms That Led Me To Endo Diagnosis
14:11 First Surgery & Aftermath
32:29 Finding My Current Surgeon & 2nd Surgery
41:02 Getting HLRCC Diagnosis
49:12 2020 & Deciding on Hysterectomy
53:02 Intentions with ITTY Going Forward
ITTY will be a series where I talk about different aspects of living and dealing with chronic illness--from navigating the healthcare system, getting doctors to believe you, finding right care, socioeconomic factors influencing the care you receive, the emotional and mental toll, etc.
You're not alone, and neither am I. I'm talking to you, and I want you to talk to me.
-Sandra
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