Episode 97 | Samarrah’s Story: A Son with an Ependymoma Brain Tumor

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09/10/23

My guest today, Samarrah, is sharing her story about her son being diagnosed with a brain tumor. I encourage you to be present as you listen to her story and take the wisdom she is offering.

In this episode, we talk about…

[1:49] Introducing Samarrah and her family

[2:53] Getting the diagnosis of an ependymoma brain tumor

[6:19] Processing the brain tumor diagnosis

[8:44} Treatment for ependymoma

[12:43] The role of parents in a child’s cancer treatment

[15:32] Finding support and community

[19:13] How Samarrah’s daughter handled the situation

[23:21] What helped Samarrah to cope with her son’s diagnosis and treatment

[26:59] What Samarrah’s son has taught her throughout this process

[28:06] The importance of a high-quality hospital experience and medical team

[29:43] How Samarrah plans to help her son process this experience

[31:15] Life post-diagnosis

[32:23] Samarrah’s book and the foundation she and her husband created to support ependymoma research

Connect with Samarrah:

Instagram

Facebook

Twitter

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Child Life On Call is a community of parents and professionals that share ideas, stories and resources to help YOU navigate your child’s unique experiences. We give you strategies to support yourself and your family through life’s challenges. We are so glad you are here.

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