7. Why is patient voice important in health care? / Vanessa Slavich and Peter Kane
For nine years, Vanessa Slavich took a traditional, reactive, “whack-a-mole” approach to manage her battle against a rare and aggressive tumor, working with highly specialized doctors operating in various treatment silos. Frustrated with the outcomes, this year, Slavich is taking a new more proactive and strategic approach. She’s using her career in technology startups as a model for turbo-charging her research and treatment options in a unique way — which she describes in a recent post in Substack, called “The Startup Body: managing my health #Likea Boss.” And Slavich is “designing her health” in collaboration with Peter Kane, Founder and Executive Director at Research to the People, a non-profit biomedical research initiative based in San Francisco. Research to the People helps patients co-lead and direct new research and treatment options for their conditions. The group is creating a bold new model for patient-centric treatment and giving voice to patients who are grappling with rare and complex diseases. Slavich and Kane talk about their collaboration and how it represents a model for the future of precision, personalized medicine.
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